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For Patients > Advocacy Services > What Is Patient Advocacy?

What Is Patient Advocacy?

The Center for Patient Partnerships provides free advocacy services for clients with serious chronic or life-threatening illnesses. The Center also serves caregivers, friends or others close to people living with serious illness.

Specifically, patient advocacy includes comprehensive support to help clients:
  1. clarify their diagnosis and treatment options

  2. assess their own values, strengths and priorities

  3. gain access to quality healthcare

  4. connect with personal and community resources

  5. negotiate coverage with insurers

  6. communicate constructively with employers

  7. make evidence- and value-based medical decisions

  8. identify necessary financing options

  9. partner with healthcare and other service providers

Guiding principles for patient advocacy

There are many approaches to advocacy; ours is one. Our guiding principles stem from patient- and family-centeredness. To us, this means:
  1. we will help patients and families recognize and honor their own values and priorities when making decisions;
  2. whenever possible, we will help patients and families build the capacity to advocate for themselves; and
  3. advocacy approaches are individualized--while all of us share common threads of experience, each person's experience and healing path is distinct.
These principles require some caveats:
  • As patients, we are not always "right".
  • Patients are part of a team, and preferably they can become the "captain" of their team.
  • Patients and families can communicate in ways that build rather than burn bridges.
  • Patients may not always act with their own or their families' best interests in mind. It's an art to help shine light on possibilities without imposing judgment, or even seeming to impose judgment.

Core Advocacy Skills

Building Capacity/ Empowerment – helping someone develop skills and abilities advocate for herself or a loved one to make more informed medical decisions, anticipate and manage the financial and work life implications of illness, and find the support and resources necessary to cope and live life under a "new normal."

Assessment – A process of listening, asking questions, asking for clarification, asking additional questions, observing, and listening again with the purpose of gathering information so you can best advocate with and empower your client.

Empathy - Identification with and understanding of another's situation, feelings, and motives.

Listening & Communicating – Paying attention to our client and being effective talkers; including specific skills of opening moments and active listening.

Confidentiality – Respecting the integrity of information shared by clients. Sharing it with no one the client does not explicitly authorize you to share it with.

Cultural Competency - Openness and skills to understand and value distinct beliefs, practices, communication methods, perspectives and approaches to life, regardless of race, ethnicity, culture, or language proficiency.

Decision Making – A process of identifying options, sorting and framing, and empowering people to make decisions consistent with their values.

Asset-based, Creative Problem Solving – Analyzing an existing or potential problem by incorporating values, anticipating challenges, thinking creatively and reflecting on one’s approach.  Identify and discover the strength and potential of individuals and communities.

Ethics - Communicating and acting in concert with a collective understanding of “right living” in the following areas:

  • Trustworthiness (truthfulness, sincerity, candor, loyalty, promise keeping, honesty)
  • Respect (autonomy, courtesy)
  • Responsibility (diligence, continuous improvement, self-restraint)
  • Justice (fairness, impartiality, equity)
  • Caring (kindness, compassion)

Collaboration- Working with others to provide more comprehensive advocacy and problem-solving support.

Case Management - Keeping files and recording case information to facilitate efficient, effective, organized advocacy. Communicating in timely, appropriate ways to improve someone’s ability to affect advocacy outcomes.

 

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